We are pleased to announce that the University of Texas at Houston has been awarded the KBS 2012 research grant. This grant is for over $96,000, and is a two year study that will be headed by Dr. Shervin Assassi. It is entitled “Molecular Changes following Treatment with Cyclophosphamide or Autologous Hematopoietic Cell Transplantation in patients with Systemic Sclerosis.” We know the title makes for less than a compelling read for most people, but this is a very important study. It will be a very precise look at the changes that occur at the cellular level for two very different kinds of treatment. One of the major goals is to establish bio markers that can be predictive in establishing the best treatment option for future patients.The grant is for a total of $96,548. The expected term of the research project is two years.
Attention: Ralphs/Food 4 Less Shoppers
It’s annual re-enrollment time! Support KBS by shopping at Ralphs or Food 4 Less & it costs you nothing extra! Click here to read about how it works…!
Letter from Dr. Lori Chung, Stanford University School of Medicine
To the supporters of the Karen Brown Scleroderma Foundation: We would like to express our extreme gratitude for your support of scleroderma research and the Scleroderma Center of Excellence at Stanford University Medical Center. The money from KBS supported the completion of an innovative project identifying new markers in the blood for scleroderma patients who are more likely to develop pulmonary arterial hypertension (PAH), an often deadly complication of the lungs. We also discovered new markers in the blood that are elevated in scleroderma and lupus patients who have PAH, and may serve as targets for new therapies. >>Read more about how KBS’ grant impacted the Stanford Scleroderma Center…
The final report for KBS grant awarded to John Varga, MD at Northwestern University are in! Northwestern was the recipient of KBS’ 2010 Pilot Research Grant which was two-fold: to develop a novel mouse model of scleroderma lung disease, and to identify biomarkers for scleroderma that could be ultimately used in the clinical setting to evaluate the activity, severity or progression of fibrotic complications of the disease. Read more
Dr. Lori Chung has a mission and it is personal. Her commitment to scleroderma was prompted by her sister’s diagnosis. “I am devoted to providing superb care to patients with scleroderma & I am absolutely committed to further developing the Stanford Scleroderma Center of Excellence where we will perform state-of-the-art research to better understand scleroderma, & ultimately to develop new treatments for this devastating disease,” says Lori Chung, MD, MS, KBS’ 2011 grant recipient. Continue reading
12th Annual Gingerbread House Workshops ~ Mark Your Calendar!
Announcing the dates for the 12th annual Gingerbread House Workshops benefiting the Karen Brown Scleroderma Foundation. Each participant is provided with a gingerbread house ready for decorating. There are candies and decorations for every taste, color scheme and décor. With a professional pastry tube filled with royal icing, participants create their dream house of gingerbread. Continue reading
A perfect way to support a worthy non-profit organization while preparing for one of Californiaʼs potential natural disasters – Give them to people you love!
KBS’s Earthquake Kits were developed using guidelines of the International Red Cross, the Los Angeles Fire Department and FEMA. Each comprehensive kit is packed in a bright yellow bucket (which doubles as an emergency toilet) and contains everything you’ll need for the next disaster, including:
Backpack Flashlight/radio/cell phone charger
Emergency food bars First aid kit
Jelly beans (in case of jaw injury) Pry bar
Leather palm gloves Toilet liners
Solar blankets Utility knife
Water pouches Whistle
Dust masks Water purification tablets
Ponchos Nylon cord
Wet Naps Waterproof matches
Light Sticks Chemical ice packs
Chemical toilet disinfectant Gel hand sanitizer
Duct tape Can opener
Gas & water shut off tool Survival candles
Now offering 1 person, 2 person, or 4 person kits. Pet kits also available.
For more information or to place your order, download the KBS Earthquake Kit Flyer.
Announcing the dates for the 11th annual Gingerbread House Workshops benefiting the Karen Brown Scleroderma Foundation. Each participant is provided with a gingerbread house ready for decorating. Continue reading
Internationally recognized scleroderma expert Dr. John Varga has been awarded the Karen Brown Scleroderma Foundation’s (KBS) Pilot Research Grant for 2010. Dr. Varga is the director of the Scleroderma Program at Northwestern’s Feinberg School of Medicine in Chicago, and is a prolific researcher and author having published over 160 original research articles and two books. Continue reading
Welcome to our new website! It is the centerpiece of our strategy of taking our grass roots organization to the next level. It is designed to educate—and to ultimately motivate— new supporters to step forward to help KBS create new research money to combat scleroderma. As you click through the site, you will see many new links and features. Continue reading