The final report for KBS grant awarded to John Varga, MD at Northwestern University are in!  Northwestern was the recipient of KBS’ 2010 Pilot Research Grant which was two-fold: to develop a novel mouse model of scleroderma lung disease, and to identify biomarkers for scleroderma that could be ultimately used in the clinical setting to evaluate the activity, severity or progression of fibrotic complications of the disease. Read more

Dr. Lori Chung has a mission and it is personal.   Her commitment to scleroderma was prompted by her sister’s diagnosis. “I am devoted to providing superb care to patients with scleroderma & I am absolutely committed to further developing the Stanford Scleroderma Center of Excellence where we will perform state-of-the-art research to better understand scleroderma, & ultimately to develop new treatments for this devastating disease,” says Lori  Chung, MD, MS, KBS’ 2011 grant recipient. Continue reading →

12th Annual Gingerbread House Workshops ~ Mark Your Calendar!

Announcing the dates for the 12^th annual Gingerbread House Workshops benefiting the Karen Brown Scleroderma Foundation. Each participant is provided with a gingerbread house ready for decorating. There are candies and decorations for every taste, color scheme and décor. With a professional pastry tube filled with royal icing, participants create their dream house of gingerbread. Continue reading →

A perfect way to support a worthy non-profit organization while preparing for one of Californiaʼs potential natural disasters – Give them to people you love!

KBS’s Earthquake Kits were developed using guidelines of the International Red Cross, the Los Angeles Fire Department and FEMA.  Each comprehensive kit is packed in a bright yellow bucket (which doubles as an emergency toilet) and contains everything you’ll need for the next disaster, including:

Backpack Flashlight/radio/cell phone charger
Emergency food bars First aid kit
Jelly beans (in case of jaw injury) Pry bar
Leather palm gloves Toilet liners
Solar blankets Utility knife
Water pouches Whistle
Dust masks Water purification tablets
Ponchos Nylon cord
Wet Naps Waterproof matches
Light Sticks Chemical ice packs
Chemical toilet disinfectant Gel hand sanitizer
Duct tape Can opener
Gas & water shut off tool Survival candles

Now offering 1 person, 2 person, or 4 person kits.  Pet kits also available.

For more information or to place your order, download the KBS Earthquake Kit Flyer.

Internationally recognized scleroderma expert Dr. John Varga has been awarded the Karen Brown Scleroderma Foundation’s (KBS) Pilot Research Grant for 2010.  Dr. Varga is the director of the Scleroderma Program at Northwestern’s Feinberg School of Medicine in Chicago, and is a prolific researcher and author having published over 160 original research articles and two books. Continue reading →

Welcome to our new website! It is the centerpiece of our strategy of taking our grass roots organization to the next level. It is designed to educate—and to ultimately motivate— new supporters to step forward to help KBS create new research money to combat scleroderma. As you click through the site, you will see many new links and features. Continue reading →

KBS is proud to have been the beneficiary of funds raised at the 12th annual 7-Eleven Franchise Owners Association David Mitchell Memorial Golf Tournament on April 21, 2010.  Over 120 golfers enjoyed the putting contest, the $100,000 shot and 18 holes of golf at Oak Creek Golf Club in Irvine.  KBS thanks the FOA and Donna Byrd.

Melody’s 10th Annual Gingerbread Workshops were a success! Thank you to all who participated. We look forward to seeing you again at this year’s workshops this December. Check back for specific dates and to make your reservation.